Category: Uncategorized

I don’t like the word “disabled” and here’s why…but let me know what you think!

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1 

@estrellaguanchecanaria

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp

Here’s a new blooper, where Alexa decided to join in 😅

Be sure to watch the two new YouTube videos on my latest surgery, and to stay in the loop with all of my creative projects. And please like and share!

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1 

@estrellaguanchecanaria

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp

Here’s Part 2 of my series on a new surgery, the Vena Cava method, that might help if you or a loved one has IIH or pseudotumor cerebri.

Let me know if you have any questions, and please like and share!

Disclaimer: This video does not intend to, nor is it its mission to facilitate or give advice, express or implied, nor does it desire in any way to influence anyone to take any kind of action, medical or otherwise. All decisions need to be consulted with a physician and are the ultimate choice of the person/patient and their family.

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together:

Subscribe here:    / @erpublishing  

@estrellaguanchecanaria

Logo by Sean Cavill

PDF links and articles for more detail: https://journals.lww.com/neurosurgpraconline/fulltext/2024/12000/lumbocaval_shunt_for_idiopathic_intracranial.13.aspx

eShunt: https://medicine.yale.edu/news-article/yale-neurosurgeons-implant-first-endovascular-device-for-hydrocephalus-in-north-america/ 

https://jnis.bmj.com/content/16/Suppl_1/A29.1

https://jnis.bmj.com/content/16/Suppl_1/A78.1

#ChronicPain#ChronicIllness#ChronicIllnessSupport#ChronicIllnessAwareness#ChronicMeansForever#ChronicMeansChronic#KeepShowingUp

There’s a new surgery that might be the right one for you, or your loved one, for IIH or pseudotumor cerebri. Make sure you’re subscribed to my YouTube so you don’t miss anything!

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

@estrellaguanchecanaria

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp

Here it is, the first of my two-part series on a new surgery that might be the right one for you, if you have IIH or pseudotumor cerebri. Part 2 is coming soon. 

Make sure you’re following to catch all my videos!

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

@estrellaguanchecanaria

Here are some PDFs and articles to get more info:

https://journals.lww.com/neurosurgpraconline/fulltext/2024/12000/lumbocaval_shunt_for_idiopathic_intracranial.13.aspx

eShunt:

https://medicine.yale.edu/news-article/yale-neurosurgeons-implant-first-endovascular-device-for-hydrocephalus-in-north-america/

https://jnis.bmj.com/content/16/Suppl_1/A29.1

https://jnis.bmj.com/content/16/Suppl_1/A78.1

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp 

There’s a new surgery for IIH and it might be right for you. Stay tuned for my full video on YouTube and for my experience with this surgery, coming soon.

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

@estrellaguanchecanaria

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp

Sometimes my videos involve singing 😆

To catch all the silly (and not-so-silly) updates, follow my YouTube channel, and please like and share!

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

@estrellaguanchecanaria

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp #SingingIsJoy #Joy

This video was tough for me to record, but I want to always be honest with my viewers. Chronic pain means chronic, and it’s never easy.

Please be advised, the content warnings for this video include: debilitating chronic pain, despair, suicidal ideation, emotional resilience.

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness

Translation: “Let’s give a voice to those who don’t have one”

Por más desolador que sea el dolor crónico, el sufrir en silencio es todavía peor. La combinación puede hacer mucho daño. 

Es por eso que, desde el comienzo de este canal, me he enfocado, no en ocultar el dolor, sino en apuntar hacía la alegría. Tengo la esperanza de que estos recordatorios te den la oportunidad de encontrar tu voz y compartirla.

As painful as chronic pain is, I can only say that suffering in silence can hurt most. The combination can be difficult, to say the least. 

This is why, from the beginning of this channel, I have focused not on covering the pain but on finding the joy. I am hopeful that these reminders will give you a chance to find your voice and share it. 

Follow my YouTube channel to stay in the loop with all of my creative projects. And please like and share! 

Photo by @CharoGosp

Logo by Sean Cavill

#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #Joy #Saying #Poem #Silence #Suffering #Voice #Hope #DolorCronico #Sufrir #Sufrimiento #Pena #Voz #Esperanza #Alegria #Dicho #Poema #EnfermadadCronica #Salud 

Ok sometimes I’m a little silly…but we all make mistakes!

Come check out my new YouTube playlist of bloopers and mishaps while filming my videos. And make sure you’re subscribed to my channel so you don’t miss anything!

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.