Chronic Pain

This website is dedicated to the impact chronic pain has on the human body at all levels: physically, psychologically, emotionally, and spiritually. Its aim is the discussion and spread of systematic structures that have in some way helped those with chronic pain, myself included. Inclusive will be both western medical and eastern non-traditional practices.

Under the umbrella of my own long battle with an immunological-neurological disease called Pseudotumor-Cerebri (also known as Benign Intracranial Hypertension or/and Idiopathic Intracranial Hypertension) diagnosed in 1992; and a complex clinical history with other conditions.

Please note that this is one of three sister websites:

Thank you very much for your support and encouragement as we journey a difficult road through chronic pain!

Pseudotumor Cerebri Website: Chronic Pain Introductory Paragraph

The birth of this website is deep-rooted in my condition, Pseudotumor Cerebri, and my long struggle with the signs and symptoms, and failed treatments, of an immunological-neurological dis-ease, and what it means to live with one. My vision here is to generate a platform for open discussion, research/investigation, think tanks, and dispersal of information; a knowledge base and experiential foundation, and to continue an exploration of pain manifested over time, on the path to physical wellness and liberation.

            Three websites are linked here, for your convenience: www.pseudotumor.life, about my experience with the medical side of this condition; www.onemomentintime.com, about dealing with the chronic side of physical, psychological, and emotional pain. This website covers and array of subjects, offers suggestions, resources, & links. Lastly, it also serves as a blog for thoughts of a journey through an insidious chronic daily path; and  www.unsusurro.com (same as previous, in its Spanish language version). The aim is to cover all aspects of chronic pain: the modern Asclepian [after Asclepius, first doctor demi-god in Greek mythology*] medical system, as well as Hygeian [after the healing Goddess Hyeia].

* Note – from Wikipedia, https://en.wikipedia.org/wiki/Asclepeion  4-9-2020

New Poem: ¿Y sí?

Full text (English below:)

¿Y si lo hago?

¡Salta!

Hola, pero y, ¿sí?

No lo pienses… ¡Salta! ¡Esta es tu oportunidad!

Silencio

¡Ay no, no puedo!
¿Por qué?

Quiero… pero no puedo.

Pero un…

No me atrevo coño. Déjame en paz.

Silencio

¿Y si lo intentas?

¿Y si me muero?

¿Qué pierdes?

Mi vida.

Pues eso… ¿Para qué la quieres si no saltas?

Pues no lo sé.

¡Pues ya! Salta!

Bueno, salto… ¿sí?

¡Sí!

¿Estarás abajo?

Y, ¿Qué importa?! ¡Tú salta!

Gracias

¡De nada!

ENGLISH:

Poem — And yes?

12/16/2022

And if I do it?

Jump!

Hello, but and, yes?

Don’t think about it… jump! This is your chance!

Silence

Oh no, I can’t!

Why?

I want to… but I can’t.

But a…

I don’t dare, fuck. Leave me alone.

Silence

And if you try?

And if I die?

What do you have to lose?

My life.

Well, that… what do you want it for if you don’t jump?

Well, I don’t know.

Well, then! Jump!

Well, I’ll jump… yes?

Yes!

Will you meet me at the bottom?

And, what does that matter?! Just jump!

Thank you

You’re welcome!


This poem means a lot to me, and to my dear friend @CharoGosp 

I hope it moves you, and if you can please share it, it would mean the world ❤️

#poetry #photography

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

Visit https://www.pseudotumor.life/ to learn more

@estrellaguanchecanaria

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My New Travel Videos Are Arriving Soon

Have you ever wondered what it’s like to travel as someone with chronic pain? It’s not easy, but my tips will help make the journey smoother for you.

Follow along on my YouTube channel to get all my tips on traveling around the world with a chronic illness, with my playlist “Traveling with Chronic Pain.”

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#Travel #ChronicIllness #ChronicIllnessSupport

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

Visit https://www.pseudotumor.life/ to learn more

@estrellaguanchecanaria

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More Cooking Videos Coming Soon!

Stay tuned for lots more recipes coming soon, with all my favorite Canarian foods!

If you haven’t watched my previous videos yet, check out my playlist “Easy Living With Chronic Pain”.

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

@estrellaguanchecanaria

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#ChronicPain #ChronicIllness #ChronicIllnessSupport #ChronicIllnessAwareness #ChronicMeansForever #ChronicMeansChronic #KeepShowingUp

Blooper: Silly Singing

I love music and singing, and occasionally I’ll just burst into song when I can’t think of what to say! 🤣

If you want to see more bloopers, or more of my experiences on living with chronic pain, check out my YouTube channel today.

#headaches #cephalagia #chronic pain #bloopers

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

@estrellaguanchecanaria

Logo © SC

Part 3 of My Series on Headaches/Cephalgia is Now Live!

Here it is—Part 3 of my series on YouTube where I give you insights into what it’s like living with headaches and cephalgia. Thank you so much for being here, and for sharing!

#headaches #cephalagia #chronic pain

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

@estrellaguanchecanaria

Logo © SC

New Headache Video Coming Soon!

I’ll be sharing Part 3 of my series on living with headaches and cephalgia on my YouTube channel, so make sure you’re subscribed!

#headaches #cephalagia #chronic pain

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

@estrellaguanchecanaria

Logo © SC

Blooper: I Forgot to Comb My Hair!

Sometimes when my headaches are too painful (which is most days), I can’t even brush my hair! But hey, we do the best we can 😉

#headaches #cephalagia #chronic pain

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria/

@estrellaguanchecanaria

Logo © SC

Filming Videos Is Sometimes Exhausting

Here’s a peek behind the curtain, when even filming a video wipes me out 😅

But your support and shares and comments mean the world! Thank you for subscribing on YouTube and following along ❤️

#chronicillness #fatigue #chronicpain

If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together. 

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria

@estrellaguanchecanaria

Logo © SC

New Poem: Dejar de Ser

Here’s my latest poem, with photographs and voice over by my dear friend Charo.

It really means a lot to me, so I hope it gives you a moment of reflection, and that you share it with those you love too.

#poetry #photography

FULL TEXT IN SPANISH:

Llegará un día que ya no seré. No sentiré, reiré, lloraré,

no gritaré ni cantaré, no saltaré, amaré ni sufriré.

Cuando llegue ese momento, espero que sea como

una caricia de brisa de mar que me haga sucumbir

en un sueño profundo del que ya no despierte y me convierta en nada.

Cuando sea nada, quizás, sólo quizás, alguien me recuerde como lo que fui o lo que le signifiqué.

Así, pequeña, como una milésima parte de un grano de arena, nada soy y nada seré.

ENGLISH TEXT:

There will come a day when I will no longer be.

I won’t feel, laugh, cry, I won’t scream or sing, I will not jump, love or suffer.

When that time comes, I hope it will be like a caress of sea breeze to make me succumb in a deep sleep from which I will no longer wake up and I become nothing.

When I am nothing, perhaps, just perhaps, someone will remember me like what I was or what I meant to them.

Like this, small, like a millionth part of a grain of sand, I am nothing and I will be nothing.


If you’re ready to find a like-minded community of those who are living with chronic illness—and trying to find the joy in everyday life—you’re in the right place.

Subscribe to my YouTube channel to stay up-to-date on my chronic illness journey, and we’ll discover new ways of living joyfully together.

https://www.youtube.com/@ERPublishing/featured?sub_confirmation=1

https://www.instagram.com/estrellaguanchecanaria/

@estrellaguanchecanaria

Logo © SC